Archive for the 'CFIDS' Category

the other kind of social disease

The Meriam Webster Dictionary defines the term “social disease” as the following:

Main Entry:  social disease

Function: noun

Date: 1891

1: venereal disease.

I’d like to respectfully submit a second meaning:

2:any disease or condition that significantly impacts ones social life, friendships, relationships, and general interaction with society…

I was recently diagnosed with CFIDS or Chronic Fatigue Immune Deficiency Syndrome.  I have seen doctor after doctor after doctor.  I take medication for anxiety disorder and an inability to manufacture enough GABA (the stuff your brain makes that allows you to physically relax) and have for more than ten years.  These are realities I’ve come to deal with and are, for me, not terribly debilitating.  Sure, I don’t sleep well, but I’m I don’t have agoraphobia or claustrophobia or any other phobia that keeps me from fully enjoying my life- having several large circles of friends, enjoying the blessing of living in NYC and all that it brings, traveling the world over for business and pleasure, finding absolute nirvana being a stranger in a strange land.

I have been sick and tired over the years, suffering bouts of exhaustion and increased pain that left me cranky, sleepless and with an intense desire to hibernate.  Some attributed this to a latent depression or the aftermath of being hit by a van whilst crossing the street almost 20 years ago.  The accident did a good bit of damage to my body, the effects of which are felt more intensely and impact my life more acutely at times.  Spoken or not, most people assume the former, not having been in my life for the accident and all that followed. 

By people, I mean my friends and acquaintances.

I’m not going to lie.  I found this to be frustrating.  I have seen internists, orthopedists, physiatrists, therapists (physical and emotional), psychiatrists, neurologists, accupuncturists, every kind of “-ist” one can think of.  I’m very proactive about my health.  I don’t despair.  I have rare moments of sadness over the some of the tougher aspects of my childhood/ young adulthood.  I always pull through and I’m always OK. 

The last six months, however, have been out of control.  I was out of work for months, for what I thought was some crazy-mutant evil sinus infection.  I’ve had surgery, taken steroids, exhausted supplies of anti-biotics, changed my diet, everything.  I just couldn’t get better.  And I didn’t know what to do.  Staying home all the time because I was too tired or dizzy or fuzzy to go out didn’t leave me with much to talk about other than what was wrong with me.   Naturally, this affected my relationships with people.  I mean, how many times can a person listen to someone complain about the awful smell or electric mucus or fatigue or headaches, or whatever.  It’s a drag. 

You see, just because you’re anxious or tired doesn’t mean you’re depressed.  And even if one IS depressed, it doesn’t mean you’re not physically ill.  My affect has always been positive, regardless of my circumstances, and I’ve yet to meet any one of the “ists” that felt differently.

Continue reading ‘the other kind of social disease’

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truth

“I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.”

truth

Upon common theatres, indeed, the applause of the audience is of more importance to the actors than their own approbation. But upon the stage of life, while conscience claps, let the world hiss! On the contrary if conscience disapproves, the loudest applauses of the world are of little value - john adams
November 2017
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from the man who taught me everything:

“Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.”

bygones